Sitting by the river with a strong breeze moving the water and blowing against one side of my face while the sun warms the other.
I woke up in a warm house, while it was still dark and made coffee. Made a to-go breakfast for my older daughter for her drive to work. I laughed with my younger daughter taking her to school.
Now I am sitting in the sun and the wind by the water praying, reading, writing, listening, smiling.
Behind me is a cemetery where my grandparents, family members, and friends rest peacefully. Memories and love dance between us and connect us.
The books in front of me are titled “Pilgrim” and “Gold.”
Talking to God, Rumi writes:
“Today you arrived beaming with laughter– that swinging key that unlocks prison doors.
You are hope’s beating heart. You are a doorway to the sun. You are the one I seek and the one who seeks me. Beginning and end.
You greet need with generous hands. You flood us with spirit,
ringing from the heart, lifting thought.”
Reading this, he and I say it together. I like to think God smiles in the sunlight.
Across the cove the sun and the wind dress a weeping willow tree. Geese float tucked away from the tide.
When I am fully here, in this moment, with a full heart and an open mind, and time alone with God, what more can I ask for? I am not alone.
Thank you for this view. Thank you for this day. Thank you for this life. Thank you for your love.
Amen.
* My practice/devotion for Lent this year is to write a “proem” (prayer-poem-prose) in the spirit of Brian Doyle each day of the season. I will share some of them.This is day #3.
Creator God, thank you for things that grow and change and bloom in their own time.
Thank you for patience so that we can wait with hope on your timing.
Thank you for giving us grateful hearts so that we can appreciate the impermanence, the fleeting moments–nothing remains in bloom and that makes each opening, each unfolding, each blossom special.
Thank you for making us able to grow, able to change, able to seek you, to seek beauty. Thank you for making us new creations in response to the shining of your light, your truth.
God, we thank you for helping us let go when it is time. Lord, I am not always good at this. Letting go hurts. I want to hold on to the blossoms, hold on to the people, hold on to the perfect moments–I want to stay in those wonderful experiences, found and lost in time, captured and forgotten in memory. Like Peter, I want to build dwellings to stay right there.
All around us, you show us that’s not how it works. You show us in your creation that everything has its time, its season. You show us the petals, the leaves dropping off, falling to the ground, coming apart, and going back into the dirt, back to dust.
“Remember that you are dust and to dust you shall return.”
From dust to dust. From dust to seed. From seed to sprout. From sprout to bud. From bud to flower.
Thank you for the dust we are and the blossoms we can become.
Thank you for your love that helps us grow and bloom.
Thank you for things that grow and change and bloom in their own time.
In your time.
Thank you.
* My practice/devotion for Lent this year is to write a “proem” (prayer-poem-prose) in the spirit of Brian Doyle each day of the season. I will share some of them. This quick prayer on Ash Wednesday is the first.
The expression, “It takes a village to raise a child” is incomplete. The thing is, as we go through life, it never doesn’t take a village. The more I have opened myself up, welcomed friendships, been with family, worked at the church–there is never an age we don’t need a village around us. We lose people we love, we go through illnesses, life gives us things we don’t expect and aren’t ready for, and we need people. And we can be there for people.
One of the places I have seen that most clearly in my life is with our daughter Ava. I have written about her story here and there (this Tidewater Times story is maybe the best summary), Ava developing epilepsy at age 10 after brain swelling has become a defining part of her life in a way no one wants.
The village around us has included people from the Oxford Community Center and Oxford Fire Department, people from Christ Church Easton, people from Caroline and Talbot County Schools, family, friends, churches, social media, prayer lists, and goes further than I came name or be grateful enough for.
As we enter into a next phase of Ava’s care and world, I want to give an update and background for those newer to the village.
Since 2014, a range of medications have not been able to control her seizures in a way that doctors, Ava, or any of us are good with. But since moving her care to Nemours A.I. DuPont Hospital a few years back, there has been progress and some hope.
Late this past fall, we found out that Ava is a strong candidate for epilepsy ( resective brain) surgery. It comes down to what part of her brain is causing her seizures and what other cognitive functions that part of the brain is responsible for. After a number of tests, it seems likely that the seizures are coming from her left temporal lobe. They were originally worried that they were coming from her frontal lobe, which would have ruled out surgery.
The goal is for her not to have seizures any more, or total seizure freedom as the neurologists like to say. Given Ava’s case and how things have progressed, resective surgery is the best chance for her not to have any more seizures. But there are other options if that isn’t a possibility. Her neurosurgeon told us that from where Ava is right now based on test results, studies, etc., 95 percent of patients have some form of surgery available to them.
In December and January she had a contrast MRI and an angiogram, both of which are to help map where important things are so that on January 30 they can do a “stereotactic implantation of depth electrodes” to then do a long-term monitor of her seizures. Simply put, they are going to drill small holes through her skull and put monitors on her brain, then pull back her medicine and watch her having seizures.
Her neurosurgeon gave a solid analogy: when they monitor seizures on the outside of her skull, it’s like listening to a conversation through a wall; they need to step into the same room to really hear what’s being said. Because they need to know exactly where her seizures are happening and what part of her brain it is to know whether they can remove it.
This is incredibly exciting and hopeful news. It is not experimental surgery, it is something neurologists have been doing and feel is her best chance to live without seizures. And we know a young man in our community who has had the surgery and has been seizure free and thriving since.
It’s also a lot to take in, process, and sit with, both as a parent and for Ava. Excited, hopeful, nervous, and scared are all words that are tossed around regularly.
For Ava’s part, she is a rock star. She knows what she wants and she sits through medical procedures like she is eating lunch. This past year, a tattoo artist friend was ready to do a big cherry blossom tattoo on her shoulder. He asked how she did with pain/needles. She didn’t flinch or seem at all bothered through two-plus hours of drawing, coloring, and shading.
As a parent, and as a family, there are small things that make you sad. We will be in the hospital for Anna’s 21st birthday, and depending on how long they keep her (one to two weeks), Ava may be in the hospital for her 18th birthday.
If she is a candidate for resective surgery, recovery would be three to six months. Ava is scheduled to graduate from high school in the spring and is especially looking forward to senior week after graduation. So surgery would be in the middle of the summer.
But one procedure at a time, one day at a time. January 30 and the stereotactic testing is coming up. Before that, and before having to be in the hospital for two weeks, both Ava and Anna will try skiing for the first time. There are experiences to be had and memories to be made every day.
“Thank you” isn’t enough for all the love, all the prayers, all the reaching out, all the positive energy, all the good vibes and thoughts, that have come from so many people. I am, we are, so grateful.
At no point in life does it ever not take a village surrounding any of us to get us through.
Maybe you have these moments. Sitting in the back yard by a fire. The night sky is clear and stark and full of stars, even with light pollution from the town. It’s the end of a long day and my birthday, so it’s a day where memories are ripe, just below the surface, and waiting to bubble up.
Deep breaths, easy smile, a moment of clarity. Sturgill Simpson plays at low volume on the bench next to me.
Moments and memories extend and swirl and I feel like every second of my life to this point, every person I have met, every setback, every success, every heartbreak, everyone and everything I have ever loved, every bit of pain felt, every joy, every experience, all add up to and come together in this one moment, the present moment, and all of it, every bit of it, is gratitude.
And what it looks like is tears running down my face, with no attempt to stop them, because I know I haven’t done anything to deserve any of it; that it’s a gift that I can never repay, all I can do is be in awe of it; all I can do is start to put my finger on it.
But I know what it is.
It is grace.
It’s grace that even though I mess up and do the wrong thing, even though I lose my temper, I can sit under this incredible sky and find solace and a reset button. I can try again.
It’s grace that getting lost in the enormity of the night sky, that I am here and that there is place for me in all of it.
It’s grace that the sun comes up and there is another day and a chance for something new–that I’ve never seen or thought about or encountered before.
Grace maybe begins when we remember. We remember and are grateful for this gift that we can’t earn, but which ought to shape who and how we are in the world. It’s a gift that isn’t for us to to keep to ourselves but to try to extend to someone else.
“Grace is when God is a source of wholeness, which makes up for my failings. My failings hurt me and others and even the planet, and God’s grace to me is that my brokenness is not the final word … it’s that God makes beautiful things out of even my own [stuff].
Nadia Bolz-Weber
I sit in the back yard, next to a fire, under an expansive night sky, and memories and people and life dance with the stars and the flames. Stories swim in my head and they all rise to the sky.
If “prayer is the raising of the heart and mind to God,” (Baltimore catechism), then this fireside chat is prayer, maybe the best kind.
I think of Meister Eckhart, who said, “If the only prayer you said was thank you, that would be enough.”
